#SCDM24 is proud to present this year’s unmissable keynote sessions, where you’ll be inspired, challenged, and empowered by unique experts offering fresh perspectives on clinical trials and the transformative power of data.
Closing the Women’s Health Gap: Leveraging Data to Advance Women’s Health Equity
September 30, 2024 - 9:30 AM to 10:45 AM
Despite process, significant disparities in women’s health outcomes and access to care persist. From cardiovascular disease and autoimmune conditions to endometriosis, maternal health, and menopause women face unique challenges that are frequently overlooked or misunderstood in medical research and clinical practice. This keynote will explore how data can be leveraged to close critical gaps in women’s health.
In this keynote, Kathryn Schubert, President & CEO of the Society for Women’s Health Research, will share insights on the barriers to women's health equity, including the underrepresentation of women in clinical trials, biased algorithms in digital health technologies, and lack of sex-disaggregated data. Schubert will then outline concrete strategies for using data to drive more equitable, patient-centered women's health care, from improving the diversity of study populations to incorporating gender-specific measures into digital health products.
Attendees will leave this session with a clearer understanding of the women's health gap, as well as actionable ideas for how clinical data managers can use their expertise to champion women's health equity.
Finding Tomorrow - How Science and a Bake Sale Partnered to Change the Course of a Terminal Disease
October 2, 2024 -12:00 PM to 1:00 PM
Mark Dant is the founder and Volunteer Executive Director of the Ryan Foundation. Mark founded the Ryan Foundation in 1992 shortly after their only child Ryan was diagnosed with MPS I. Since inception, the Ryan Foundation has funded millions in research and provided the critical funding that led to the development of Aldurazyme, the first and to date only drug FDA approved to treat MPS I.
Mark’s family’s journey has been documented on CBS 60 Minutes, the Today Show, CNN, Biography Magazine, Readers Digest in 13 languages around the world, Golf Digest, the LA Times and numerous newspapers and news outlets globally. Mark and his family have been key advocates speaking to the FDA and in 2009 successfully championed the US House of Representatives to pass the Ryan Dant Health Care Opportunity Act.
Mark, a police officer for 32 years, retired as an Assistant Chief of Police with the Carrollton Texas Police Department in 2016. Mark spends his time now leading the Ryan Foundation and volunteering for numerous other US and Global rare disease nonprofits to help empower the patient advocate through the understanding that all of us have the power to turn action to hope and hope to reality.